Our Aim

Our Ulster-RARE (Ulster University Alliance against Rare Diseases) research teams at Ulster University aim to understand rare diseases through our expert knowledge, research, and first-class facilities, with the goal to improve the quality of life, treatment and care for those impacted by rare diseases in Northern Ireland.

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Number of People Affected

30
Million

in Europe

3.7
Million

in the UK

110
k

In Northern Ireland

1 IN 17
individuals are impacted by a rare condition

50%
of the patients affected are under 19 years old

6000
Over 6,000 rare disorders exist

Work with us

Whether it's new product development, core research, clinical trials, referral pathways or simply a deeper understanding about a particular rare disease, you can engage with the university's researchers and academics to help with tangible issues specific to you.

Find out who to contact and what to do if you want to work with us.

Contact us