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The Doctoral Midwifery Research Society, Ulster University Centre for Maternal, Fetal and Infant Research and EUROlinkCAT are holding this event in recognition of the 4th annual World Birth Defects Day to present current evidence on how parents who have children with congenital anomalies can work in partnership with professionals to share and undertake meaningful and relevant research.
The event is free and open to all, and members of the public who are interested in learning about parents involvement in research and parent-led networking. Down Syndrome will be the central focus of the seminar this year.
**Places are limited to 25 in the room but we are delighted to be able offer online access to the event. Please register early to avoid disappointment**
10.00-10.20am | Registration Dial in\Access live stream | |
10.20-10.30am | Professor Marlene Sinclair | Welcome and Introduction |
10.30-11.20am | Professor Roy McConkey | Parents and professionals working in partnership to tackle relevant research issues |
11.20-12 noon | Professor Anna Latos-Bieleńska | A consultant geneticist’s story of working with parents and young people who have Down syndrome in Poland |
12 noon-12.50pm | Lunch Intermission | |
12.50-1.05pm | Mr Jarek Pieniak | A personal story of one parent’s journey to creating an online support network for parents who have children with Down Syndrome |
1.05-1.15pm | Dr Bernie Reid | Focus Group research outcomes from mothers who have children with Down syndrome |
1.15-1.40pm | Dr Dympna Walsh Gallagher | Doing sensitive research with pregnant mothers who have a disability |
1.40-2.10pm | Professor Marlene Sinclair/ Dr David Elliott /Dr Julie McCullough | EUROlinkCAT ConnectEPeople Research Project |
Jordanstown Sports Village Location
Jordanstown Sports Village is the home of sport at Ulster University, located just seven miles north of Belfast.
Event info
This event has ended
Friday 2 March
10am to 2.15pm
8H08
Professor Marlene Sinclair