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The Doctoral Midwifery Research Society, Ulster University Centre for Maternal, Fetal and Infant Research and EUROlinkCAT are holding this event in recognition of the 4th annual World Birth Defects Day to present current evidence on how parents who have children with congenital anomalies can work in partnership with professionals to share and undertake meaningful and relevant research.

The event is free and open to all, and members of the public who are interested in learning about parents involvement in research and parent-led networking. Down Syndrome will be the central focus of the seminar this year.

**Places are limited to 25 in the room but we are delighted to be able offer online access to the event. Please register early to avoid disappointment**



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Professor Marlene Sinclair

Welcome and Introduction


Professor Roy McConkey

Parents and professionals working in partnership to tackle relevant research issues

11.20-12 noon

Professor Anna Latos-Bieleńska

A consultant geneticist’s story of working with parents and young people who have  Down syndrome in Poland

12 noon-12.50pm


Lunch Intermission


Mr Jarek Pieniak

A personal story of one parent’s journey to creating an online support network for parents who have children with Down Syndrome


Dr Bernie Reid

Focus Group research outcomes from mothers who have children with Down syndrome


Dr Dympna Walsh Gallagher

Doing sensitive research with pregnant mothers who have a disability


Professor Marlene Sinclair/ Dr David Elliott /Dr Julie McCullough

EUROlinkCAT ConnectEPeople Research Project

Jordanstown Sports Village Location

Jordanstown Sports Village is the home of sport at Ulster University, located just seven miles north of Belfast.

Find out more about our Jordanstown Sports Village.

Campus Address

Ulster University,
Shore Rd,
BT37 0QB

T: 02870 123 456

Event info

This event has ended

Friday 2 March

10am to 2.15pm


Professor Marlene Sinclair

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