ConnectEpeople Research – Parents Voices. World Spina Bifida and Hydrocephalus Day

This event has ended

Date
Time
09:00 to 11:30
Organiser
Julie Cummins
Contact details
+44(0)28 7012 4094
j.cummins1@ulster.ac.uk

Please join us on the 25th October 2018 for our online event to mark the 7th annual World Spina Bifida and Hydrocephalus Day #WSBHD18.

Our webinar will begin at 9.00 UTC, and will be repeated at 6.00 UTC. You will also be able to catch up using the link that will be made available on our Facebook page and YouTube channel.

TimeEvent
9am to 9.05am UTC Welcome
Dr Julie McCullough, Ulster University
9.05am to 9.20am

Professor Marlene Sinclair, Ulster University

Overview of the ConnectEpeople Project

9.20am to 9.40am Mr Lieven Bauwens, Secretary General, International Federation for Spina Bifida and Hydrocephalus
9.40am to 9.50am

Mr Aidan Daly, Northern Ireland

A Parents Personal Story

9.50am to 10.05am

Mrs Marie McGonnell, Health Adviser, SHINE

Living with Spina Bifida and Hydrocephalus

10.05am to 10.15am

Mrs Clare Heaney, Northern Ireland

Amelie’s Journey

10.15am to 10.30am TBC
10.30am to 10.40am

Mrs Zuzana Valette, Slovakia

A Parents Voice

10.40 am to 11.10am

Carmen Clemente, International Federation for Spina Bifida and Hydrocephalus

WSBHD18 Spina Bifida and Hydrocephalus throughout the Lifespan

11.10am to 11.20am

Ms Anna Verster, Senior Adviser on Food Fortification, International Federation for Spina Bifida and Hydrocephalus

Folic acid and flour fortification

11.20am to 11.25am

Facebook group ‘Redefining Spina Bifida’

WSBHD2018 video

11.25am to 11.30am

Professor Marlene Sinclair

Closing remarks


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