Background:
Congenital Heart Disease(CHD) is the most commonly occurring congenital abnormality. The incidence of CHD In Northern Ireland ranges from 8-10 per 1000 live births and there are approximately 200 children born each year with abnormalities of varying complexity. Meeting the nurturing requirements of a baby and finding the balance between energy expenditure and quality of the maternal infant bonding experience in babies who are very symptomatic is a challenge for clinicians. Approximately 120 children have heart surgery each year , and many will require surgery in the first few months of life. Nutritional status is a key risk factor influencing survival through surgery. Evidence informed advice and guidance on optimizing nutritional status are a necessity.
Main research questions
What Clinical considerations impact on the decision making process regarding the type of infant feeding in the preoperative phase?
What are the key factors to be considered by the medical team in optimizing the nutritional status of babies preparing for heart surgery?
How do parents interpret the information they receive on infant feeding and make choices?
Can parents and professionals co-design information and advice to optimize nutritional status of infants preparing for heart surgery?
Method
The design of the study is exploratory. Mixed methods will be used to present accurate epidemiological data on infant feeding patterns and outcomes. Prospective case studies will illuminate the key issues facing parents and clinicians. Interviews with key clinicians, dieticians, Speech and Language therapists, and cardiac nurses will provide the clinical information impacting on care. Parent and professional focus groups will be formed to synthesize the data and develop appropriate information and guidance.
Sample
Study participants will be identified from the Heartsuite Database at the Royal Belfast Hospital for Sick Children in the period 2010-2020 for babies who required surgical or catheter intervention in the first year of life. The estimated sample size would be 600 participants. The case studies will be identified by the paediatric cardiology team at The Royal Belfast Hospital for Sick Children. Interviews will be conducted with the multiprofessional team.
Three focus groups with parents and professionals will be conclude the study by co-designing advice and guidance materials.
Impact
1.Provide important public health data on infant feeding practices in this vulnerable population
2.Highlight issues of nutritional concern for parents and professionals
3.Enhance the role of parents in the co-design of infant feeding guidance Outcomes from the research include the potential to impact on the co-development of infant feeding guidelines in specialist cardiac cases.
Please note, the successful candidate will be required to obtain AccessNI clearance prior to registration due to the nature of the project.
Applicants should hold, or expect to obtain, a First or Upper Second Class Honours Degree in a subject relevant to the proposed area of study.
We may also consider applications from those who hold equivalent qualifications, for example, a Lower Second Class Honours Degree plus a Master’s Degree with Distinction.
In exceptional circumstances, the University may consider a portfolio of evidence from applicants who have appropriate professional experience which is equivalent to the learning outcomes of an Honours degree in lieu of academic qualifications.
If the University receives a large number of applicants for the project, the following desirable criteria may be applied to shortlist applicants for interview.
The University offers the following levels of support:
The scholarship will cover tuition fees at the Home rate and a maintenance allowance of £19,000 (tbc) per annum for three years (subject to satisfactory academic performance).
This scholarship also comes with £900 per annum for three years as a research training support grant (RTSG) allocation to help support the PhD researcher.
Due consideration should be given to financing your studies. Further information on cost of living
Karpen, H.E., (2016) Nutrition in the cardiac newborns: evidence-based nutrition guidelines for cardiac newborns. Clinics in Perinatology, 43(1), pp.131-145. Laouar, A., (2020). Maternal leukocytes and infant immune programming during breastfeeding. Trends in Immunology, 41(3), pp.225-239. NHS (2018) Congenital Heart Disease https://www.nhs.uk/conditions/congenital-heart-disease/ [accessed 13/11/2020]. North South Inter-Parliamentary Association (2015) Paediatric Congenital Cardiac Surgery. http://www.niassembly.gov.uk/globalassets/documents/raise/publications/2015/northsouth/8315.pdf [accessed 13/11/2020]. Tsintoni, A., Dimitriou, G. and Karatza, A.A., (2020) Nutrition of neonates with congenital heart disease: existing evidence, conflicts and concerns. The Journal of Maternal-Fetal & Neonatal Medicine, 33(14), pp.2487-2492. van der Linde, D., Konings, E.E., Slager, M.A., Witsenburg, M., Helbing, W.A., Takkenberg, J.J. and Roos-Hesselink, J.W., (2011) Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. Journal of the American College of Cardiology, 58(21), pp.2241-2247. Victora CG, Bahl R, Barros AJ, França GV, Horton S, Krasevec J, Murch S, Sankar MJ, Walker N, Rollins NC. (2016) Breastfeeding in the 21stcentury: epidemiology, mechanisms, and lifelong effect. The Lancet 387(10017): 475-90. Zimmerman, M.S., Smith, A.G.C., Sable, C.A., Echko, M.M., Wilner, L.B., Olsen, H.E., Atalay, H.T., Awasthi, A., Bhutta, Z.A., Boucher, J.L. and Castro, F., (2020) Global, regional, and national burden of congenital heart disease, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. The Lancet Child & Adolescent Health, 4(3), pp.185-200. World Health Organization. Breastfeeding https://www.who.int/health-topics/breastfeeding#tab=tab_1 [accessed 13/11/2020].
Submission deadline
Friday 14 May 2021
12:00AM
Interview Date
26 May 2021
Preferred student start date
September 2021